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I’m Jana Summey – a speaker and Alpha-gal syndrome advocate.

I’ve spent the last ten years of my life fighting to stay alive from a mysterious tick bite. I’ve spent my entire life speaking, inspiring, and mentoring others through their own battles to reach the mountaintop.

Drawing on my experience with Alpha‑gal syndrome, “the red meat allergy” I share how living “beyond the bite” reshapes leadership under uncertainty. Your audience will be entertained while learning practical
leadership lessons on navigating change, leading without all the answers, and sustaining authentic, human‑centered leadership when control is limited. Your organization will be excited to build resilience through adaptability, clear communication, empathy, and intentional boundaries.

A medical diagnosis has the power to stop time. In an instant, priorities shift, certainty dissolves, and the future feels radically different than it did moments before. In this talk, I share how navigating Alpha-gal Syndrome, the “red meat allergy” became one of the most formative leadership
experiences of my life.

When I was diagnosed with Alpha‑gal Syndrome, my relationship with food, health, and certainty changed permanently. Caused by a tick bite that triggers an allergic response to mammal‑derived products, Alpha‑gal is a condition marked by unpredictability, vigilance, and adaptation. Living with it requires what I call living beyond the bite: understanding that one unseen moment can demand a lifetime of intentional leadership over your own choices and limits.

Faced with limitations I couldn’t ignore and answers I couldn’t rush; I was forced to reexamine how I lead—myself and others. I learned that resilience isn’t about pushing through at all costs, but about adapting with intention. Leadership isn’t about having all the answers, but about communicating clearly when answers are still unfolding. And strength isn’t found in invulnerability but in the courage to ask for help, set
boundaries, and remain present even in uncertainty.

Alpha-gal syndrome’s persistent uncertainty forced me to slow down, listen more closely to my body, and accept that quick answers were no longer an option. In that space, I began to reassess how I lead—not just
teams and organizations, but myself.

What emerged was a redefinition of resilience. Alpha‑gal taught me that resilience is not about powering through discomfort or ignoring warning signs; it is about adapting with intention. Leadership, I learned, is not diminished by uncertainty—it is revealed by how we communicate, adapt, and stay present when outcomes remain unclear. Strength is not in having all the answers; it is the courage to ask for help, to say no without guilt, and to lead with honesty when the answers are still forming.

Through storytelling and practical reflection, this the audience hears how moments of personal crisis can sharpen decision-making, deepen empathy, and redefine what sustainable leadership truly looks like.

From my journey with Alpha‑gal, I identified twelve leadership traits that now guide how I show up every day. These traits were not learned in theory—they were forged in real‑time decisions, missed expectations, and continuous recalibration. They apply not only to health challenges, but to any environment defined by change, complexity, and limited control – both personal and professional.

  • Audiences leave with a renewed understanding of resilience,
    a more human‑centered leadership lens, and practical tools for leading
    authentically—especially when circumstances are beyond their control.

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